- As a parent with health conditions or parent to a child(ren) with health conditions, what do you hope you’re doing right?
As I am neither a parent with health conditions, or one who has a child with health condition, hell I’m not even a parent at all, I decided to ask mine to write something for this question. I also asked them to say a little bit about the challenges they face as well, as I think this is an important aspect when we talk about the carer. I know what you are thinking… why didn’t I just answer the 2nd prompt (which I will tackle also). That’s easy, because this disease, although it is mine, it does not solely affect me. So I thought that this was a great opportunity to show how hard this can be not only for me, but also for my parents, my sibling, my friends.
So here is what my mum had to say:
As parent to a teenager with a chronic health condition the things I hope I am doing right are:
- Patients, what advice or tips do you have for caregivers out there – professional or otherwise!
I think for me the thing that I find is so under appreciated, but which often helps the most, is to just be there and listen. To have someone who is willing to hear my rants, to listen when I am upset, angry, confuse and happy. To let me say all that is on my mind, and to not feel judged. That is the greatest gift. It makes me feel understood, safe, comforted and most importantly heard. Everyone needs someone to talk to. Someone who will listen.
I think the gifts are so often in the small things. If someone goes out of their way to help me, is thoughtful and does something (like open a bottle) which they know I can’t do, without me having to ask, or them making a fuss about it.
Kindness, is one of the most important things to be, as a caregiver. And it’s not hard to do. A smile, a nice word, a joke. Anything that will brighten up my day (and yours).
To all the care-givers out there, thank you for what you do. For being there. For caring. Thank you